They hand you a glucagon kit, a stack of pamphlets, and a phone number for the endocrinologist’s office – and then you’re just… home. That was us ten years ago, standing in our kitchen at 11pm googling “what do I actually need” because nobody at the hospital gave us a list. This is the list we wish someone had handed us that first week.
Not medical advice – just parent experience. Follow your child’s diabetes care team for treatment, dosing, and what must stay on prescription. Hospital-issued items (glucagon, insulin, meters, sensors, etc.) are not Amazon shopping list problems; this post is the “extra life stuff” that made our first weeks less chaotic.
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A Bag to Keep It All Together
Before anything else, get one bag that holds the daily stuff – meter, strips, lancets, low supplies, and (if you already have them) spare pump or CGM supplies. Digging through drawers at 7am before school gets old fast. We wrote a full breakdown of what goes in ours, but a dedicated diabetes supply organizer with separate pouches beats a repurposed makeup bag – you’ll know exactly where everything is without looking.
Something to Keep Devices On (When You Have Them)
Not every family starts with a CGM or pump on day one – many kids leave the hospital on injections (MDI) first, and devices come later. When you do get a sensor or pump, nobody fully warns you how much of this journey is fighting adhesive. Sensors and pods peel up at the edges within days, especially on active kids. We’ve written up what’s worked for us keeping a Dexcom stuck for the full wear and an Omnipod stuck for its full wear. Bookmark those for when devices enter the picture – don’t feel behind if you’re still on shots this week.
A Low-Treatment Station (Actually More Than One)
You need fast-acting carbs for mild lows in at least three places: the diabetes bag, the car, and wherever your kid sleeps. Don’t rely on remembering to move one stash around – stock all three so you’re never digging through a cabinet at 2am. (Severe lows and glucagon are a care-team / prescription topic – not something we source from a shopping cart.)
- Glucose tabs – we buy multi-packs; you will go through them faster than you expect
- Juice boxes – small enough for a backpack, and most kids will actually drink them when they won’t eat anything else
- Something for school specifically – check with the nurse’s office about what they’ll keep on hand versus what you need to supply
Keeping Insulin From Cooking or Freezing
Insulin that gets too hot or freezes can stop working the way it should – and you may only notice when numbers look weird. Long-term storage still follows your pharmacy and care-team rules (fridge, etc.). For short trips out of the house, a Frio cooling wallet is what we use so pens and vials aren’t sitting in a hot car – soak it in water, no ice packs required. A simple vial protector is worth a few dollars if you use vials; dropped and cracked vials are a very avoidable emergency.
Something Just for Comfort
This part feels optional until you see how much it helps. A new diagnosis is scary for a kid, and having something that makes it feel less medical can take the edge off. Ruby the Bear – a teddy bear set up with similar “devices” to what many kids wear – was one of the first things that made our son feel less alone, even if “the only one” was a stuffed animal. Skip it if money is tight this week; the bag and low supplies matter more.
What Not to Buy Yet
It’s tempting to buy everything the first week – we did too. A few things worth waiting on:
- Backup devices “just in case.” Most insurance and manufacturers handle warranty replacements; you likely don’t need a second meter or a spare pump before you’ve even used the first one.
- A big stash of adhesive/skin-prep products before you know what your kid’s skin reacts to. What works varies a lot kid to kid – buy small quantities of a couple of options first, then stock up on whatever actually works.
- Anything marketed as a “cure” or “reversal.” If you see it in your first few weeks of googling at 2am, it’s not real. Save your energy for the things that actually help.
You Don’t Need All of This Today
If you’re reading this in the first few days after diagnosis: you have time. None of this has to happen today, or this week. Start with the bag and the low-treatment stations – everything else can be figured out as you go, the same way we did. And lean on your clinic – they own the medical plan; this list is only the household side.
Also worth reading
- Type 1 diabetes books for kids and parents
- T1D 504 plan guide for school (when school is in the picture)
- T1D back to school boxes
- Flying with Type 1 – TSA, pump, and CGM tips (when travel shows up)
- Easing MDI injections – most families start on shots, not a pump
- Celiac screening for kids with Type 1
- Type 1 diabetes conferences: a parent shortlist
- Diabetic alert dogs – what they do and what they cost



